For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection; Undark, September 30, 2019

Adrian Pecotic, Undark; For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection

"Research to capture these snapshots, called genome-wide association studies, can only draw conclusions about the data that’s been collected. Without studies that look at each underrepresented population, genetic tests and therapies can’t be tailored to everyone. Still, projects intended as correctives, like All of Us and the International HapMap Project, face an ethical conundrum: Collecting that data could exploit the very people the programs intend to help."